The Indivo system is essentially an inversion of the current approach to medical records, in that the record resides with the patients and the patients grant permissions to institutions, clinicians, researchers, and other users of medical information. Indivo is a distributed, web-based, personally controlled electronic medical record system that is ubiquitously accessible to the nomadic user, built to public standards, and available under an open-source license.
History of the Personally Controlled Health Record
The Indivo project has its roots in the Guardian Angel project, a collaboration between Harvard and MIT that envisioned a web-based, automated guardian to manage health data and decisions. The Indivo model has inspired a number of commercial efforts throughout its evolution. Most recently, we have advocated a move towards a platform model, so that other application can connect to the PCHR and extend its core functionality. Indivo X is our vision of how this modular PCHR platform should function.
Conferences and Meetings
In order to share the concept of a personally controlled health record, and promote its adoption, we hosted, at Harvard Medical School, two conferences on PCHR infrastructure. 100 invited participants came each year, including leaders from government (CDC, NIH, FDA, SSA, CMS, VA), information technology (Google, Microsoft, Intuit), business (Walmart, Intel, AT&T), and academia.
In 2006, in a meeting keynoted by Mitch Kapor, we established broad agreement on the personal control model;in 2007 we achieved a broad consensus on the platform structure, where innovation and variation happen in an ecosystem.
Within months of the PCHRI conferences, Google, Microsoft and Dossia emerged as giant PCHR platform providers all sharing the basic PCHR platform approach. Microsoft Healthvault launched with Indivo open source code in the product. Dossia contracted with the Children's Hospital Informatics Program to adapt Indivo for use by the millions of employees of the founding companies. Google later announced the Google Health model, building a platform around the Anvita (formerly Safemed) knowledge base and analytics. Materials and video from both conferences are online at PCHRI 2006 and PCHRI 2007.