THE PERSONALLY CONTROLLED HEALTH RECORD
Indivo is the original personally controlled health record (PCHR) system. A PCHR enables an individual to own and manage a complete, secure, digital copy of her health and wellness information. Indivo integrates health information across sites of care and over time. Indivo is free and open-source, uses open, unencumbered standards, and is actively deployed in diverse settings, in particular our own Children's Hospital Boston and the Dossia Consortium.
A platform for health-data innovation
Indivo is built to be extended and customized: users can connect their record to third-party applications that enhance the management and analysis of their health information. Indivo accelerates the development of these third-party applications by providing a core set of common features:
- secure storage, categorization and aggregation of health data.
- single sign-on and standards-based data-access delegation.
- a simple, open, web-based Application Programming Interface (API).
- unified user notification.
A couple of days ago, we released the source code for the first public alpha of Indivo X, our latest vision for personally controlled health records.
As the Indivo X development effort moves ahead towards an end-of-year public alpha1, we have released a screencast explaining the new architecture, as well as the default XML schemas used to store and retrieve data in Indivo X.
As we gear up for the Indivo X Public Alpha 1 later this year, we've created an Indivo Announce mailing list.
Dan Nigrin talked about Personally Controlled Health Records on WBUR.org in Technology To Engage Patients in their Health Care
More at
our Blog.
“We cannot overstate how important PHRs are to the efficient functioning of a low-cost, high-quality health-care system. [...] We think that the Indivo system, or something like it, is a good place to start.”
Clayton Christensen, Harvard Business School
“The Indivo platform is enabling a powerful change in the way health care consumers can access and control their data and make informed health care decisions.”
“The National Library of Medicine (NLM) was delighted that this project, which it nurtured and funded from the onset, will be used to give millions of American citizens control of their medical information to improve their care and protect their privacy.”
Donald A.B. Lindberg, MD, Director of the National Library of Medicine
“I have long followed and supported Indivo, an early and disruptive innovation in the personal health record space.”
John Halamka, CIO CareGroup Health System
“If you ask me, Indivo is the most thoughtful and firmly grounded PHR project in the country, bar none.”
Micky Tripathi, President and CEO of the Massachusetts eHealth Collaborative
“Change has started, and by 2010 Web records will be ubiquitous. The patient who wants good care should campaign for a Web record as soon as possible. [Indivo] has come closest to realising this vision and the aim is to create a patient-owned record”
Sir Muir Gray, principal architect of the UK health information infrastructure overhaul
